„Direct to Consumer“-Gentestangebote (DTC GT) im Internet – Eine empirisch-ethische Untersuchung kommunikationsethischer Aspekte unter Berücksichtigung der Perspektive medizinischer Lai*innen mit Fokusgruppen

Schaper, Manuel

dc.contributor.advisor	Schicktanz, Silke Prof. Dr.
dc.contributor.author	Schaper, Manuel
dc.date.accessioned	2022-11-22T15:46:45Z
dc.date.available	2022-11-29T00:50:11Z
dc.date.issued	2022-11-22
dc.identifier.uri	http://resolver.sub.uni-goettingen.de/purl?ediss-11858/14352
dc.identifier.uri	http://dx.doi.org/10.53846/goediss-9533
dc.description.sponsorship	GSGG	de
dc.format.extent	81	de
dc.language.iso	deu	de
dc.rights.uri	http://creativecommons.org/licenses/by/4.0/
dc.subject.ddc	100	de
dc.title	„Direct to Consumer“-Gentestangebote (DTC GT) im Internet – Eine empirisch-ethische Untersuchung kommunikationsethischer Aspekte unter Berücksichtigung der Perspektive medizinischer Lai*innen mit Fokusgruppen	de
dc.type	cumulativeThesis	de
dc.contributor.referee	Schicktanz, Silke Prof. Dr.
dc.date.examination	2020-12-03	de
dc.description.abstracteng	The cumulative dissertation examines direct to consumer genetic testing (DTC GT) with regard to the communication-ethical dimension of its marketing and with special consideration of the perspective of medical lay people. It combines theoretical-conceptual and empirical parts using focus groups. The former relate to considerations of the communication-ethical dimension of health communication in general and the addressing of medical lay people by DTC GT websites in particular. The leading question is which ethical aspects arise when consumers are addressed by DTC GT companies. This question can in turn be broken down into two essential sub-questions, which are each discussed in the context of two sub-chapters (i.e. publications): 1. What are the ethical implications of persuasive communication techniques in the context of health communication in general and DTC GT in particular? 2. What are medical lay people's perspectives on DTC GT? The thesis provides a detailed reconstruction and description of various techniques used in public health communication, in particular persuasion, and their respective functioning and ethical implications. It shows that communication techniques can operate in a moral grey area regarding the recipients‘ autonomy by using arational appeals and that such techniques are being used in advertising for DTC GT, while they do not align with the ideal of non-directiveness in genetic counseling. It further provides a comparative analysis of focus groups with lay people in Germany, Israel, the Netherlands and the UK, highlighting differences and similarities in (moral) attitudes, perceptions and evaluations regarding DTC GT, while special focus is given to the issues of trust in and trustworthiness of commercial providers of genetic testing vs. clinical genetic testing in the traditional health care context. Based on the analysis, some practical recommendations are given: 1. Development of ethical standards regarding communication / advertising in collaboration with stakeholders involved (especially consumers, medical and human genetics associations, biotech companies, consumer protection organizations) 2. In the case of Germany: Ensuring the quality of commercially offered genetic tests analogous to existing regulations of the Gendiagnostik-Gesetz (GenDG) (e.g. by establishing and monitoring binding standards, state-controlled certification, mandatory involvement of medical professionals) 3. Linking provision of DTC GT with professional, non-directive genetic counseling by doctors 4. Provision of guiding information and raising awareness of the benefits and risks as well as the limitations of genetic tests and their predictive value 5. Sensitization for data protection / privacy issues in general, but also in lifestyle tests	de
dc.contributor.coReferee	Kettner, Matthias Prof. Dr.
dc.subject.ger	Gentest	de
dc.subject.ger	Empirische Ethik	de
dc.subject.ger	Ethik	de
dc.subject.ger	Persuasion	de
dc.subject.ger	Kommunikation	de
dc.subject.ger	Fokusgruppe	de
dc.subject.ger	Laien	de
dc.subject.ger	kommerzielle Gentests	de
dc.subject.eng	Direct To Consumer Genetic Testing	de
dc.subject.eng	Focus Group	de
dc.subject.eng	Empirical Ethics	de
dc.subject.eng	Communication Ethics	de
dc.subject.eng	Lay People	de
dc.subject.eng	Persuasion	de
dc.subject.eng	Ethics	de
dc.subject.eng	Genetic Testing	de
dc.identifier.urn	urn:nbn:de:gbv:7-ediss-14352-2
dc.affiliation.institute	Philosophische Fakultät	de
dc.subject.gokfull	Philosophie (PPN619942320)	de
dc.description.embargoed	2022-11-29	de
dc.identifier.ppn	1823235212
dc.identifier.orcid	https://orcid.org/0000-0002-2385-5031	de
dc.notes.confirmationsent	Confirmation sent 2022-11-23T06:15:01	de

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